Three of the children of Edith Lemay and Sébastian Pelletier have retinitis pigmentosa, an incurable degenerative disorder

Last week, as the sun set over the craggy hills of Spitzkoppe, Namibia, Edith Lemay and her husband, Sébastien Pelletier, stared out over the vast landscape. The Canadian couple and their four children had spent the day scaling boulders, then cooled off from the desert heat in a nearby rock pool.

“There was a sweetness hanging in the air and as the sun disappeared, it gave way to more stars than we’ve ever seen in our lives,” said Lemay. “It was just … magic.”

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