Family unable to afford high energy bills left to provide 24-hour care after Welsh health board ‘stops guaranteeing nursing package’

The parents of a severely disabled 11-year-old boy, who requires constant 24-hour medical attention at home, have been told that the NHS cannot guarantee overnight nursing support for him because they can not properly heat their house.

Leah and Troy Van Keogh were told by their local health board that unless they heated and lit their home sufficiently to ensure a “suitable working environment” its nurses were under no obligation to fulfill a seven nights at week at-home care package for their son, Marley.

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